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Its a scary time, having a baby, but its even scarier when your brand new baby is born with complications and you hear those heart breaking words from a doctor telling you your newborn has brain damage, or some other life limiting condition.  So this is my letter to you, if you’ve had that heartbreaking news recently.

Let me start by saying this… you’re not alone.  

It might seem right now that you are, that no one other than you can possibly understand what this feels like, but we do and we are here for you and with you.

We know how numb you feel and how your life just suddenly changed in a heartbeat. How your hopes and dreams for the future seem to have been stolen from you and your beautiful baby. We get it.  

You’re not alone.

You may already have left the hospital and be at home juggling medicines and appointments with doctors and therapists.  Professionals who are there to make things better but seem to be breaking your heart with everything they tell you about the future.  Delivering every little bit of information wrapped neatly with a little bow full of negativity.  We get it.

You’re not alone.

You might be sitting in your perfect nursery reading this, looking at the walls you painted whilst imagining the perfect life you’d have with your baby.  Remembering the toys you picked out whilst gently holding your bump.  And feeling your heart break all over again. We get it.

You’re not alone.

You may be looking at your friends babies and wonder whether the pang of jealousy you feel makes you the worst friend in the world.. it doesn’t.  You may feel like they are on a different journey to you now and in a way they are but its no better or worse than yours, it’s just different. We get it.

You’re not alone.

Your ‘perfect’ life with your ‘perfect’ baby isn’t over. Its just beginning and it’s going to be amazing.

Yes it may be slightly different to the life you’d imagined but

Read the full original post here authored by  . You can visit her blog here.

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